Prialt

Il ne faut surtout pas vous décourager,le moral ,c'est l'essentiel.Je souffre depuis 10 ans d'une neuropathie chronique,c'est un enfer;mais je tiens en attendant le miracle Est ce que tes douleurs se sont améliorées avec le Prialt,et as tu eu des effets secondaires?
J'espère pour vous que celà s'améliore petit à petit

The very next day after the prialt was removed from pain pump (had been in 2 months), my mother's memory, concentration, ability to talk and handle business matters, etc. was BACK to the fantastic mind set and ability it was before the prialt was put in the pump.    It might help an already alheimer's patient that doesn't know people or able to handle anything with no chance of return of mind from pain but that is the only time. 

have you gotten any better? I ask because Prialt was put in my mother's pump as only alternative because she has sleep apnea and doctor wouldn't keep morphine in even though it was working and not a nightmare experience like this prialt is.  We are about to turn the prialt off and see if we can get our mother back.  I pray for you and hope people gets the message that prialt is not the answer if they want to keep thier memory, speech............take all the pain pills you need but stay away from Prialt! 

My side effects are Psycosis, inability to express myself, or to speak at times.  I still have anxiety, night sweats, insominia, burning pain in new areas that were not pain issues before prialt.
I was on a dilutable form of Prialt for about 2 years.  I had some weird symtpoms that would go away.
After I got a new pump and catheter, due to damage to the catheter, shredding, the pump problem was a recall, both were replaced.  I was now getting a purer form of Prialt, a nondilutable form.  Life of prialt is 84 days in pump.

Hi, Thank you all so much for taking the time to inform other people of this drug. My husband has RSD and we did a 21/2 week trial with the Prialt and made it up to 14 micrograms before the trial was over. He did great with the trial so we had the intrathecal pump installed. Even though there was about 11/2 month lapse between the trial and permanant placement the doctor started my husband back at the 14 micrograms post implant and my husband went crazy. He thought that myself and the kids were out to get him it was horrible. After talking with the drug company the doctor told us that he was supposed to start my husband back at the minimum dose and work it back up. Well let me tell you that my husband has never been the same. He is so confused, his teeth are completely disintegrating, and he also has weird stuff that has taken over his mouth. He is constantly obsessing over his mouth trying to pick what he calls "metal". I know that for anyone out there who may be suffering or watching a loved one suffer you will try almost anything to help give them or yourself your life back. However as far as this family is concerned Prialt has just given our family a new set of serious circumstances to worry about and just tonight I told my husband as he was taking of down the street almost running from me because he said he did not know who I was, we are going to the doctor tomorrow and having them turn this evil medicine off. We are a very young family and I can not tell you how much I miss my husband and watching him in pain suffering is horrible but having him on this medicine is horrible x's a million. Please if you are considering using this medicine read up on it and try to learn as much as you can becuase like I said the trial went well but it has been a devestatingly downward slide for us since then. 

je viens de commencer les essaie s avec le prialt , stoper apres 2 jour pour rupture de stoc pour le moment je suis tres fatigué....avant nour avons essayé morphine par voie intrasecal et j'ai fait une allergie....J'ai des probleme de dos...lombosciatique ressidive apres arthrodese...J'en ai mare , je me sent tres seul et ne trouve personne a qui parler meme si je vie en couple ; mon conpagnon ne comprend pas et aussi j'ai 2 filles de 6 et 9ans c'est dur???besoin de reconfort

WHAT I MEANT BY GOING FURTHER I MEANT THAT I WAS DOING WELL BUT THE PRIALT WAS SUPPOSED TO BE 1000 TIMES BETTER THAN MOROPHINE AND I WAS WANTING TO MAKE THIS WORK BECAUSE I WOULD EVENTUALLY COME OFF THE DAULADID.  FOR SOME I GUESS IT WORKS BUT IF YOUR DAUGHTER HAS ANY MENTAL PROBLEMS OR DEPRESSION PLEASE DONT LET HER DO IT.i HAVE READ STORY AFTER STORY OF PEOPLE THAT HAVE THEIR LIFE RUINED. IT IS A LIE THAT IT CAN BE STOPPED ABRUBTLY.IT TOOK 3 MONTHS BEFORE IT WAS SUPPOSED TO BE GONE.I FELL AGAIN TODAY BECAUSE I WANTED TO WALK SO I DIDNT HAVE TO USE MY WALKER. (GAIT PROBLEMS AND BALANCE) ARE A BIG ISSUE.i ACT LIKE I AM AN ALTZIEMERS PATIENT..  I HAVE BEEN HALLUCINATING  AND I WAS HAVING A CONVERSATION WITH MY MOM BUT SHE WAS NOT THERE.  i HAVE BEEN SLEEPWALKING SO I WAKE UP WITH MY BROKEN LEG HURTING REALLY BAD AND JUNK FOOD I HAD CARRIED TO MY ROOM.. i HAVE LOST TRACK OF WHOLE DAYS.PRIALT WILL DESTROY YOUR LIFE IF YOU HAVE ANY MENTAL PSYCHOSIS..THE ONLY THING I CAN DO IS WARN OTHERS.  MY DR. SHOULD HAVE KNOWN BETTER. MY PRIMARY CARE DR. HAS PUT ME ON RIDLAN AND I PRAY FOR HOPE OF GETTING BETTER..   tONI,MY ADVICE WOULD BE TO ASK QUESTIONS. AND DO NOT IF THERES ANY DEPRESSION.  MAY GOD BLESS YOU.SORRY FOR WRITING SO MUCH .i HAVE TO LET PEOPLE KNOW

Hi Marty,
I would like to know exactly what you meant by going further with the Prialt. This is very important to me because I need to know if this Prialt is the right thing for my Daughter. Please let me know.

Thanks
Toni
tre3lynn9@yahoo.com

marty  thankyou for all your sharing. I am hoping as well to stop depressed people from getting this Prialt.The reason it helps the pain is you cant remember when your own birthdateis much less remembering you hurt.this stuff is evil 

I THANK YOU FOR SHARING YOUR EXPERIENCE.I HAD A REACTION AS WELL.i WAS TOLD WHEN I HAD IT TAKEN OUT I WOULD BE OK.ONE YEAR LATER AND NOTHING HAS CHANGED EXCEPT MAYB4E THE WORST.i CAN T CONCENTRATE TO TALK TO SOMEONE.mAYBE pRIALT HAS CAUSED US TO HAVE DEMENSIA.i AM AFRAID I AM NOT GOING TO GET BETTER.pEOPLE OUT THERE LISTEN. EVEN IF YOU ARE DEPRESSED DO NOT USE PRIALT

I LIVE THE EFFECTS DAILY.IF THINGS GO WRONG IT IS A LIE.i TAKES SEVERAL DR.VISITS AND STILL IT DOES NOT JUST GO AWAY BUT IT IS MY FAULT.I WAS TOLD IT WOULD BE 1000 TIMES BETTER THAN MOROPHINE AND I COULD GET OFF THE DAULADID THT IS STILL IN MY MEDTRONIC PAIN PUMP(IT WORKS AMAZINGLY WELL)I HAD SAID I WOULD TRY ANYTHING TO LIVE A HALF NORMAL LIFE.15 YEARS AGO I WAS IN A HORRIBLE CAR WRECK.mY NECK,BACK AND LEGS WERE BROKEN.iVE HAD 4 OR 5 SURGERIES THAT FAILED.IT IS ALSO COMPLICATED WITH FIBROMIALGIA.I ALSO HAVE DEGENERATIVE DISC DISEASE.SO DAULADID IN MY MEDTRONIC PUMP IS WHERE i SHOULD HAVE STOPPED.I HAVE HAD SPOUSAL ABUSE WHERE I WAS BEATEN IN MY HEAD THAT HAS CAUSED ME TO BE MANIC=DEPRESSANT BI-POLAR.I TRUSTED MY DR. WHEN I WAS APPROACHEDE WITH THE IDEA OF PRUALT.I JUST WANTED TO BE ABLE TO PLAY WITH MY GRAND-BABIES (THAT I CANT DO AT ALL NOW.AFTER THE PRUALT WAS ADMINISTERED I WAS TOLD IT WOULD TAKE A COUPLE OF DAYS TO WORK.WE WERE GRILLING OUT WITH THE NEIGHBORS WHEN IT HIT ME.I COULD NOT BREATHE AND I HAVE BEEN IN A STATE OF CONFUSION.I CLICK MY MOUTH CONSTANTLY.i HAVE NO SELF=CONTROL EVEN TO KNOW WHEN TO STOP EATING.I PRAYED FOR WQISDOM BEFORE DOING THIS AND I AM HAVING A BETTER DAY BECAUSE LETTING PEOPLE KNOW WHAT THEY CAN DEAL WITH IF THEY HAVE ANY NERVE PROBLEMS.i CANT FUNCTION TO CLEAN MY HOME.ITS DONE FOR ME.I JUST GOT OUT OF THE HOSPITAL WITH BLOOD CLODS IN MY LEG THAT CAUSED ME TO FALL AND THE SAME LEG BROKE FROM BEFORE.I AM HAVING VISION PROBLEMS AND I CANT AFFORD GLASSES BECAUSE I CANT WORK.I AM 47 AND JUST WENT THRU MENAPAUSE.I SWEAT 24/7.I DONT LEAVE HOME EXCEPT WHEN I GO TO THE DR. AND A LOT OF TIMES I PANIC AND HAVE TO RE-SCHEDULE.MY TEETH ARE ALL BREAKING OFF.MY PAST IS GONE I CANT REMEMBER IT.I WILL PROBABLY FORGET THIS TOMORROW..i PANIC IF ANYONE TOUCHES ME OR IF I AM IN A CROWD,i CAN BE TALKING AND FORGET WHAT I AM TALKING ABOUT,i CANT CONCENTRATEON JUST ONE THING.I REPEAT MYSELF OVER AND OVER I HAVE BEEN TOLDI HAVE ALWAYS LOVED TAKING CARE OF MY HOME AND I CANT REMEMBER HOW.I DO A LITTLE BUT I CANT FOCUS.I PRAY THAT GOD CAN HELP MY STORY TOHELP SOMEONE..i AM GETTING WORSE NOT BETTER AND I AM AFRAID THAT I WILL GET ALTIZIEMERS OR DEMENTIA.PLEASE HELP ME JESUS.HELP ME TO HELP OTHERS IN JESUS NAME

I would like to write back to the person "Guest" that had the irritation in his mouth and thought he sees bugs in the expectorant. This sounds almost exactly what my father experienced on Prialt. He got to the point that he was taking knives and scissors trying to cut out the larvae and bugs in his mouth. I had him hospitalized and had the Prialt turned off. I know that this is causing your symptoms. You need to get the Prialt turned off! After 5 weeks of hospitalization, my father is finally doing better. This drug has serious side effects. He also experienced very high protein counts in urine which made his kidney Dr. think he was near kidney failure. He is also now able to walk without his walker or cane. Prialt was disabling his walking abilities as well. For almost 2 years we didn't know what was wrong with him. Now we know, it was the Prialt!

I am still here afraid and alone.  I need someone somewhere to tell me this has happened to them also.Please.I pray everyday that God will find someone to say this is not some story I have dreamt up

I have had a broken back and 2 neck and back surgeries.I also have severe Fibromialgia.I have a broken leg right now.I am manic depressant bi-polar for many years.I thought i would never have a balanced life.My surgeon suggested a medtronic pain pump that would be inserted in my side and it would be for my back pain only.I could not beleive I had my life back.I didnt have to worry about running out of medication early or feeling confused from the medicicne.My Dr. suggested I go even further with the Prialt.I wasnt warned and everyone knows I am bi-polar.I went into a panic and then a daze.They couldnt take it all out at once.That is a LIE.I ended up having it for months.I am not able to take care of my daily things.I cant keep my grand-children. I am so confused still.By looking at my picture now ,I am not the same.I dont feel when it is even time to stop eating.I am 230lbs.My leg broke from standing..I may have to jerk and clench my teeth or I might not ever be able to remember what I do from day to day.I am loosing my eyesight.People stare at me and I wonder which thing is my body doing to make them stare.I am so alone,and I cant talk.my brain and my voice dont meet.My Dr. that did this is gone now.Please if you have any depression or mental issues dont do this.I am still trapped.Are you hearing me people?I didnt even get an Im sorry.They cant get it all out like they say there in the brochure if something goes wrong.It has to work out through your body.I am scared and I know I am messed up.I am scared nthat if I dont tell people you will be like me.It is FDA approved for now.How many have to be left in a shale or dead before anything is done.It is so easy to try anything when you hurt and I am sure that it does help some people.Just be careful and if anyone out theres like me please let me know.I pray that God watches over you as he is me.I have to get this message out to stop this from happening because this is the kind of person God has made me.I am not bitter and with Jesus I do feel peace but none of the side effects have ever went away.I hope i have at least helped someone because I truly feel led to write this.May God bless you

irriatation in my mouth, continued red and sore throat, and continuous sloughing off matter and mucous that I have to expectorate.  I have to use mouth wash and brush several times a day. The material I am spitting out looks bubly and I have seen very small bugs moving at times.  Tried to have this analyzed in a lab, but they said it was just food matter.  I cant help what I see and this is some ype of fungus that wont go away and I never had anything like this in my life.  Pump installed 8/19/09, Prialt started about 8/27/09.  The above symptoms I have had since that time..