Temodar

Hi Bob,

Like you my mum is 59 and has GBM4. She also has completed her 6 weeks radiation and chemo. She was off everything for the last 4 weeks and is starting a higher dosage (150mg) of temodar next month. Good to talk to aomeone who is going through the same as her...how are you keeping now since you started you're higher dosage?

Male 59 yrs old with GBM4 and just completed 6 weeks of radiation along with Temodar . First 3 weeks appetite was intense due to the decadron but then zero appetite coupled with nausea and had a one week bout with puss bags appearing in mouth with sore gums. Mouth OK now and nausea is much less , will be starting higher dose less often next month .

My husband has just started his radiation and chemo treatment for GBM this week. Morning after taking Temodar oral form was violently ill-nauseous, shaking, vomiting, diarhea.,zero appetite even with Zofra. Next day slightly better-slept all day(added decadron). 3rd day slightly better again but still nauseous. Today felt fine re:nausea but has had increasing short term memory loss and confusion, disorientation. He asks me if he's taken his medications every 5 minutes. Also mentioned double vision briefly I am very worried about this latest development. It is Sat night and on call physician has not called me back. Has anyone else had similar experiences? Is this temporary? Do I need to get him to the emergency room?

My husband has just started his radiation and chemo treatment for GBM this week. Morning after taking Temodar oral form was violently ill-nauseous, shaking, vomiting, diarhea.,zero appetite even with Zofra. Next day slightly better-slept all day(added decadron). 3rd day slightly better again but still nauseous. Today felt fine re:nausea but has had increasing short term memory loss and confusion, disorientation. He asks me if he's taken his medications every 5 minutes. Also mentioned double vision briefly I am very worried about this latest development. It is Sat night and on call physician has not called me back. Has anyone else had similar experiences? Is this temporary? Do I need to get him to the emergency room?