Topamax

I am 28 and have been taking Topamax for a year for migraines...100 mg twice daily. The tingling went away after several months. It was quite annoying. But that was not the worst. The mental changes were horrible!!! I started forgetting things mid sentence, couldn't think of the word I would be trying to say... ever!!!! Word salad, well this was a daily thing. I say was, the worst of it is gone. I still have my days.

Kidney stones have increased. I went from 4 in 4-5 years to 3 in 1 year. All I drink is water, 5-7 bottles a day. Now I take meds for the stones and prevention of anymore. I have to say the worst thing for me is the inability to sweat!!!! Besides the fact I cannot cool down, which makes me overheat and nauseous all the time (which I take more meds for).... I cannot tolerate the heat or sun at all!!! I start feeling all prickly like someone has a voodoo doll of me and sticking it with a 1,000,000 needles. I start to itch, bit can't satisfy it with scratching. Ohhhh its horrible!!! Sometimes I break out in hives. Cholinergic urticaria.... which requires yet another med!!! (Obviously, not working!)

Now I'm trying to tapper off Topamax. With headaches daily, taking handfuls of pills to combat everything else that now ails me.... fearing a pending migraine is around the corner, waiting to attack. All the while I wait for my ability to sweat to return!!! At least I can say I have not had 1 migraine since I have been on Topamax!!!

If anyone could enlighten me that has been through this anhidrosis state or may just know.... please, will I ever be able to sweat again?

I have epilepsy, and was taken off of 3,000mg of Keppra and put onto 400mg of Topamax daily 2 months ago. (in addition to still taking 600mg of Lamictal). I am 30, am 6' 2", and because of the medicine changes long before the recent change to the addition of the Topamax, only weigh 150lbs (just telling you this to give you my body 'specs' lol)
I have noticed that this Topamax change make my legs from my knees to my toes and my elbows to my fingertips completely tingly. Also, I have trouble finding words when I speak, and when I do things such as writing down numbers, I have a lot of trouble. For instance, I was writing the date in numerals a week ago, and when trying to write 7/29/11 and then the next day 7/30/11, I wrote 12/29/11 and then 7/3/11. I also feel what seems to be heart burn, and I don't seem to have much of an appetite, but I force myself to eat. I have no problem sleeping, but I have a prescription to take care of that. I also notice my vision has become somewhat blurry, and have a bit of trouble focusing on things when watching tv, as well as seeing things out of the corner of my eye while watching tv, as if a mouse was running across the floor 5' away from the tv on the floor near the couch. I have panic attacks, as if I'm falling down a tube, with no end in sight, and it is so intensely scary. I feel as if I must be on a street drug. All of these things became apparent when I started Topamax. My neurologist, who is a very well-respected neurologist here in Manhattan (New York City) has told me to wait it out for a bit and see if they start to slow down and dissapear. I hope that all of you, as well as my self, see some relief to this.

i have been on topomax for 12 years now, but have really been disappointed by this drug, starting to have about 20 negative reactions to it now that i never had before......one main thing is itching and scratching and i was wondering is this a sign of lupus or what is lupus?????

does anybody know about the lupus-like syndrome that i just read about while taking topomax

have u ever tryed imitrex for migrains thats what i switched to after trying all the standard
pain killersevery time i feel one about to start i take an imitrex whithin 20min im fine good luck deb

i sufferfrom seizures ,i am on 150 of the top per day when i take that dosage i have side effects that include doubble vission mental alertness when talkin struggle for propper words anziety tingling in arms n feet what gets to me the most is the doubble vission hits out of no where its debilitating the seizures are easier to live with than the side effects so im tryin different dossages to see if it is any better if not top will gone good luck with your journey hope my story showed you your not alone
deb

Ive been taking topamax for about a month now. I have severe migrains and had a seizure. So the doctor just recently put me on topamax. I am 14 years old, very young for the pill as the doctor mentioned. The side effects are horrible, its make me suffer from sereve exhaustion. I lost 8 pounds. And my vision goes very blurry out of no where . Does anyone have these side effects and can they please help me :(

Oh, I also forgot to add that I have vertigo, anxiety, dizziness, I don't sweat hardly at all, can't be out in the heat, forgetfulness, loss of focus...and the list goes on and on.

Hi, I have been taking Topamax in generic form for at least two years. I have many side effects and the headaches are getting worse and changing. I take 150mg daily at night. I get hot without hot flashes, taste perversion, back pain, leg pain, my arms and legs tingle, but the newest and scariest is the heart palpations.  My headaches went from being on one side of my head to down both jaws and down the back of my neck with intense pressure. Oh, I also have blurred vision at times and I do wear corrective lenses and it still blurrs. I did have extreme weight loss at first, but now have gained it all back and them some. Not sure what to do at this point.
Has anyone else had these symptoms????

Trish you shouldn't take Topamax if you have any visual changes. 

Trish you shouldn't take Topamax if you have any visual changes. 

please email me if you have any answers. It is cchipss75@yahoo.com

Thank you

Hi. I was taking Topamax 300 mg but decided to get off because of the twitching in my arms, legs, and even stomach.  It got pretty bad and even though I have been off of Topamax a few months, the twitching won't stop and it is actually worse.  I also have major hot flashes, not sure if this is due to the Topamax or not. I'm only 35 so I don't think it's the "change" yet lol. The hottness is so bad that I sweat through my head and my whole head/scalp is litterally wet like I just took a shower. I don't sweat anywhere else.
Of course I told my Dr. and he doesn't feel the two are related and didn't seem concerned at all by this. Both things are embarrasing, but the sweating more so because I am just dripping sweat (not to gross you out) down my face and scalp.

Has anyone had these symptoms...the sweating...the twitches AFTER being off of Topamax?

I used to have migraines often-- 8 out of 12 months one year with constant nausea/headache.  Tried everything else.  Went on Topamax.  Side effects:  WEIRD.  Numbness and tingling in left arm, fingers, toes and foot pads.  I smell dish soap strongly at all times unless I'm eating.  I have anxiety, where before I had none.  My vision is changed, kind of have trouble focusing and have to blink a lot to clear my vision sometimes.  No changes in weight or appetite at all.  The side effects are worth it to me:  I've had only three migraines since starting the medication six months ago.

I take 100mg Topamax 2x daily for Partial Seizure Disorder.  I have been on it for 4 yrs now and I cannot say enough about it, I love it.  I was on a few other medications but didn't care for them, had hair loss...didn't see great improvements.  At first when I was on Topamax I did have some verbal slurring but you learn to adjust, every so often it can still happen but I learn to laugh it off.  The weight loss side effect is fabulous!!

severe paranoid delusions each of 3 times taking Topamax for weight loss.

I have been taking Topamax 100mgs for five years for migraines. Prior to Topamax I weould get a headache evry few weeks maybe twice a month, I was weened off Topamax in 25mg increments, I started suffering from headaches daily for a month until I was forced to take the medicine again. i hate Topamax, i wish I had never started taking it.

started for mood stabilizing and migraines.  first noticed occasional tingling in feet, dizziness at 25 mg /day.  at 50 mg /day started noticing nausea and decreaesed appetite. taking on empty stomach and only 25mg at a time helped with nausea and although frequency of all these symptoms increased at 75mg I was content at this dose with the balance of benefits of the med.  Until I put two and two together and realized a recent problem was connected to the meds.  I had begun having trouble with urinary incontinence at night and about 2 months from the start of the meds (about 2 weeks at 75mg) the connection was suddenly clear. I had to stop as bedwetting is an unacceptable side effect for me.  too bad because I had less anxiety, fewer mood swings and fewer headaches.   they were so bad before hand i was willing to endure everything until the incontinence.

general side effects when on topamax 100mg bid for seizures

I have just weaned off of Topamax after 6 years. After several months of hip pain of unknown origin, I have discovered degeneration in both hips. I also have pain in my shoulder joints for no reason. Does anybody else have bone loss or osteoporosis